5 Ways Herbalists Have Immensely Helped Me

Many of you know the story of how a crazy autoimmune disease I was diagnosed with was just the result of a gluten intolerance. I found out this monumental piece of information with the help of an herbalist when I was 21.

No one I knew had ever seen an herbalist and I’m not sure why I felt driven to find one. Maybe it was because I was facing a life of chemo. Maybe because I was in chronic pain. Or maybe it was just something bigger telling me that this wasn’t the end of my journey.

I’ve worked with two herbalists since the one I originally saw moved away. Here’s how these women have immensely helped me improve my health and quality of life with some simple suggestions!

Note: I am not a doctor. Please take the following information from my experience only. This information is not intended to provide medical guidance.

Discovering the Cause of My Autoimmune Disease (Hint: It was Gluten)

When I was 21, I was told by a well-known doctor in a city near me that I would most likely be on chemotherapy for the rest of my life. Although I felt like I wanted to give up hope at that time, I ended up pursuing another option—finding a natural treatment for my autoimmune disease, dermatomyositis.

Through an herb shop about an hour away from me, I located an herbalist who agreed to see me. During my second visit with her, she told me that she thought gluten was causing my illness. I thought she was crazy. I hardly knew what gluten was.

She turned out to be right. A protein named gluten was causing my immune system to attack all my muscles and my skin. Within a week of going gluten-free, all my autoimmune symptoms disappeared and I was able to stop taking all of my medication. That was seven years ago.

The fact that I spent over four years on detrimental pharmaceutical medications, gained 30 pounds, and felt sick all the time was all undone by a woman who knew that food could make us sick. Her simple but profound knowledge dramatically changed my life for the better.

Without discovering that root cause of my illness, I would likely still be on all those medications today and still feel terrible. My quality of life would have been compromised all because doctors are still grasping the idea that food can cause such severe illnesses.

Saying Goodbye to My Crazy-Bad Menstrual Cramps

I have more or less always had bad menstrual cramps. They aren’t consistent, though. Some months are absolutely terrible. Other months aren’t bad at all. Trust me, I’ve yet to find a pattern (although I have a few theories after trying to figure it out for the last 16 years).

When I began working with an herbalist to learn more about the Fertility Awareness Method, we also worked on addressing the cause of my crazy bad cramps. The solutions she suggested have helped me to remain mostly pain-free during my period today.

Through drinking a ginger infusion, taking magnesium glycinate, and taking omega-3 supplements, my menstrual cramps have majorly improved. In the last seven months, I have only had one episode of bad pain thanks to her suggestions.

Since, unfortunately, I’ll be having a period for a long time, her help has enabled me to not feel like I want to die just because I am a woman.

Helping Me Realize Fats Are Not Bad

I have yet to have an herbalist not recommend fat to me (except, of course, the horrible kinds like trans fats).

Saturated fat such as animal fat and coconut oil as well as monounsaturated and polyunsaturated fats such as avocados and olive oil are all part of a healthy body. Yes, people will argue against this. I’m not getting involved in that discussion here. I’m here to say that my herbalists helped me realize that fats are not bad—in fact, they’re pretty essential.

Through their help, I’ve been getting more fats from all types of sources (except for Twinkies) and have more energy and better skin!

Implementing a Natural Method of Birth Control

The Fertility Awareness Method has been an enriching experience for me and my husband. I would have never been able to learn the method as intimately as I have without my herbalist.

The method enables my husband and I to forgo conventional methods of birth control, many of them toxic, and simply track my cycle via taking my basal body temperature (BBT) and monitoring my cervical fluid to know when I’m fertile and avoid intercourse on those days.

Implementing a natural method of birth control has allowed me to honor my body and also choose a conscious form of contraception that doesn’t rely on toxic pharmaceuticals. This is a huge benefit for someone who doesn’t want kids (cough, that’s me).

Allowing Me to Realize Food Is Medicine

Before I began working with herbalists, I didn’t understand how much food impacts our health. Food is everything to our health. What you put in your body, the supplements you take, whether you choose to smoke and drink, all have huge effects on our systems.

Perhaps this is the most important gift herbalists have given me, being able to realize that I have so many chances to put either medicine or poison into my body. By choosing the foods that I feel are best for me, I choose medicine (by medicine obviously meaning plants and grass-fed, free-range meat).

Whether it’s probiotics or herbs, food and supplements are a powerful form of medicine, one that I feel grateful to have tapped into with the help of a professional.

Working with an Herbalist

I would absolutely recommend working with an herbalist if you’re facing any health issues that do not yet have an identified root cause. In many instances, conventional doctors are only trained to treat our symptoms, not the cause of our illnesses.

Even for people who believe they have discovered the root cause of their illness or symptoms, an herbalist can help you better manage your health. I’m so grateful to have worked with my herbalists to be as healthy as I am today!

How to Get Rid of Butt Acne—7 Simple Habits

If you think acne is frustrating, thinking about how to get rid of butt acne (also called buttne or even assne) is even more frustrating.

Fortunately, butt acne is relatively easy to get rid of, although it does take a little bit of time and effort. With the adoption of healthier habits including eating habits, you can have a clean, smooth-looking bum in no time.

I know no one wants to talk about how to get rid of butt acne, but there are people out there who have lived with it and people out there Googling it, and so here we are.

The following list isn’t necessarily in order of most importance, and what works for one person won’t necessarily work for another when it comes to how to get rid of butt acne. So while loose clothing might majorly help you out, dry brushing might not, and vice versa.

Here are seven simple habits that will help you if you’re considering how to get rid of butt acne! 

1. Wear Loose Clothing

If you’re into wearing tight yoga clothes that don’t let your skin breathe, you might be doing your bum a disservice.

Often, yoga clothes and other tight clothes such as leggings are made from synthetic materials like polyester. These toxic clothing materials often suffocate our skin in addition to introducing it to toxins, making it a poor garment choice.

Wearing loose clothing in addition to organic clothing can help you when it comes to how to get rid of butt acne because it actually lets your skin breathe and detoxify itself.

I’m not saying you have to wear loose, flowy cotton skirts forever, but it’s a good idea to wear loose clothing most of the time while trying to get your butt acne to clear up and then you can enjoy wearing tight clothes on occasion.

2. Try Dry Brushing

After reading about some of the benefits of dry brushing, I decided to give it a try.

Basically, it’s just getting a dry brush (which are relatively inexpensive, I think I got mine for $15 on Amazon) and then brushing your skin towards the heart, so starting with your legs and then working up.

I’ve really liked dry brushing although as someone with dry skin, it does tend to be a little harsh on the skin. It’s just another way to exfoliate basically but I have really enjoyed doing it and it’s pretty refreshing and makes your skin feel amazing!

Dry brushing can help your skin recover from bouts of butt acne, just be sure to do it gently and once a day for the best benefits when you’re considering how to get rid of butt acne. 

3. Take Omega-3 Fatty Acids (EPA and DHA)

I’ve been doing a lot of research about omega-3 fatty acids lately, especially since the majority of mine had always been mostly plant-based (I’m not a big fish person).

In addition to being excellent for inflammation and menstrual cramps, omega-3 fatty acids are also great for the brain and body, including your skin.

Plant-based sources of essential fatty acids include chia seeds, flaxseeds, walnuts, and avocados. These are great, but they provide the body with ALA (alpha-linolenic acid) when the body primarily needs EPA (eicosapentaenoic acid) and DHA (docosahexaenoic acid).

The body can convert ALA into EPA and DHA, but research shows the conversion rate is rather poor. Getting the necessary amounts of EPA and DHA can pretty much only come from fish.

Taking a quality supplement such as cod liver oil (I take fermented cod liver oil) or an omega-3 capsule is your best bet (after my research, here’s one of the best ones I’ve found). I take an omega-3 capsule in addition to raw fermented cod liver oil in a liquid form every day. This can help clear your skin right up when you’re thinking about how to get rid of butt acne!

4. Consider Probiotics

I’ve talked about probiotics in a previous blog post and how finding the right one is really important, as many of them contain milk proteins (which I can’t have, being intolerant to dairy).

However, probiotics provide many benefits to the human body. They help digestion, can clear your skin up, boost energy, and overall provide you with a great foundation for a healthy body.

I take a vegan probiotic supplement a few times a week, but natural sources of probiotics are your best bet (and they’re a lot cheaper). These include anything fermented, such as:

  • Sauerkraut
  • Kimchi
  • Kombucha
  • Miso
  • Kefir (do not eat this if you can’t have dairy, although I have yet to explore water kefir)
  • Yogurt (I eat cashew and coconut milk yogurt, no milk)
  • Apple cider vinegar

You don’t need to overdo it on the probiotics—an herbalist once told me they should be considered as medicine, so there’s no need to overdose. A daily serving can be enough to help you when it comes to how to get rid of butt acne and clear up your skin!

5. Exfoliate Regularly

If you don’t exfoliate, you’re missing out on a body pampering routine that will change how you shower (or bathe if you’re a bath person—hello fellow bath lovers!).

Exfoliating helps remove dead skin cells, stimulate circulation, and refresh your skin. I always feel pretty boss after I exfoliate. If you have sensitive skin, you probably shouldn’t exfoliate any more than once a week, but if you have oily or normal skin, two times per week is fine.

I’m really into making homemade exfoliating scrub (this is my all-time favorite recipe here), they are super easy and fun to make. Certain scrubs tend to be harsher on the skin than others. In my experience, I’ve found that salt-based rubs are too harsh on my skin while sugar-based ones are perfect for me.

Exfoliating at least once a week can help improve your skin and help you when it comes to how to get rid of butt acne!

6. Eat Clean

Eating clean sounds easy, but I want to mention food intolerances here since acne is a symptom of an unhappy gut.

Since everyone’s body is different, everyone will react differently to different foods. For instance, I can’t have gluten or dairy, but I’m fine with most other foods. Some people respond fine to gluten and dairy.

A food intolerance is not the same thing as an allergy. Though they both can have dramatic and life-threatening symptoms (yes, my gluten intolerance was actually life-threatening), an intolerance tends to take a day or two to show symptoms while an allergy will have more immediate symptoms.

If a certain food makes you feel a certain way, you might consider removing it from your diet. Food intolerances can cause acne, even butt acne. Other symptoms that you’re reacting to a certain food may include:

  • Muscle pain or weakness
  • Rash or eczema
  • Fatigue
  • Arthritis
  • Gastrointestinal problems (gas, bloating, diarrhea, constipation, etc.)
  • Brain fog
  • Headaches

This list is by no means complete; even psychiatric symptoms have been shown to be associated with gluten intolerance.

If you suspect you have any food intolerances or need supplementation of any kind, I would really recommend working with a natural health doctor or an herbalist instead of just self-diagnosing and taking random vitamins. I have a vitamin and herbal regimen in addition to my diet that helps me a lot but it took years to develop with professional help!

7. Move!

Our bodies were made to be in motion. Similarly to wearing tight clothing, if you’re not moving throughout the day and are just sitting at a desk, you’re suffocating the skin on your bum. If you want to be successful when you’re considering how to get rid of butt acne, you need to get up and move!

Whether you choose to exercise a few times a week (your best option) or just take numerous breaks throughout the day to take a spin around the office, do it. I promise, your bum will thank you!

Conclusion

So as you can see, working on how to get rid of butt acne will take some time and effort. Switching to loose, organic cotton clothing, exfoliating and dry brushing, and eating clean and supplementing can help you achieve that baby bum skin you’ve missed!

My Experience with Dermatomyositis: How Gluten Was Behind It All

I’ve previously written about my misdiagnosis of dermatomyositis (which was 11 years ago now!) on HuffPost and Natural News. Today, I want to share more about what happened to me all those years ago here on my personal site.

In an effort to not to let what happened define me, I’ve mostly shied away from talking about my diagnosis of dermatomyositis at the age of 16, although I did write about it briefly when I first started my business on The Green Writing Desk.

But here we are, and I realize that part of my work is helping others and sharing something that I used to consider monumental about myself—that I was diagnosed with dermatomyositis and almost five years later, discovered all my symptoms were being caused by a gluten intolerance.

Yes, it’s that simple.

Here’s what happened and how I came to realize a devastating, life-changing illness called dermatomyositis was being caused by one of the world’s most common foods.

Disclaimer: I am not a doctor. This article is not meant to diagnose or treat any illness or provide medical advice. Please view the following story from my personal experience only. If you have any more questions about my personal experience with dermatomyositis, please feel free to contact me.

The Beginning: Muscle Weakness and Rash

I graduated high school one year early at the age of 16. As many people can testify, I was a punk-ass teenager who had dreadlocks from not brushing her hair and wore men’s clothes to school. I didn’t care about much, and I certainly didn’t care about going to college, which was why I was starting a job as a nanny for a four-year-old boy with autism a week after graduating.

A week after I started my job, about two weeks post-graduation, I was at work one Monday morning when I found I had trouble getting off the toilet. There was a vague muscle ache in my thighs. It was odd, but it wasn’t painful, and I didn’t pay it any attention.

Just days later at the end of that week, a Friday, I was in so much pain and my muscles so affected I couldn’t walk up a set of stairs. I remember going to Starbucks with my friend Kat that night to get passion iced tea, and my legs were in so much pain that I had trouble getting out of the car. I remember crying while trying to walk up the set of curved stairs to my room—I was literally pulling myself up the stairs on the railing. My muscles were giving up.

My disease quickly escalated to the point that I couldn’t work, couldn’t sleep, and couldn’t really do much at all. I first went to an urgent care doctor with my mom and was misdiagnosed with Lyme’s disease, then placed on antibiotics, which made me even sicker.

When the antibiotics didn’t help, we saw another doctor, who admitted he had no clue what was going on, even after I started developing a mild red rash all over my body. This was our family doctor who we’d trusted to care for us for years. I tried to explain to the doctors what it felt like: “It feels like I worked out A LOT, but I haven’t worked out,” and “Everything hurts.”

I had pain medication from my Lyme’s diagnosis and still couldn’t sleep. I was in pain all the time. I felt like I was going to die. This went on for three weeks before I woke up one morning and my legs—my thighs, the initial part of my body that hurt—were extremely swollen. We saw the family doctor once more, who sent us straight over to the hospital, where a bed was waiting for me.

After taking vials of blood and examining my rash, which had come on my face, back, arms, and legs, I was allowed to rest there for a few hours before being woken up in the middle of the night. Turns out I had an irregular heartbeat, and the hospital couldn’t treat me. I was being transferred, to Johns Hopkins in Baltimore, at about 4 a.m. The doctors said all my muscles had become involved and were essentially breaking down.

The Middle: Diagnosis and Treatment

I really hated being at Johns Hopkins. It was a crowded, noisy, inner-city hospital in Baltimore, about an hour away from our house, somewhere a farm girl like me had no business being. My roommate was a girl who couldn’t speak and had swollen lips; I got a glimpse of her once through the curtain.

After being at Hopkins for a day or so and running more tests, I was finally diagnosed. A team of doctors stood in front of me and told me that I would be sick for the rest of my life with a disease called dermatomyositis. It did not have a cause, it just happened. It had a treatment, but was incurable. I would need to be on medication. I might not ever feel better.

This was devastating news. I remember sobbing while they told me, and my mom standing next to my hospital bed, telling me to get it together. I couldn’t. It felt like someone telling me that I wasn’t actually going to get better. How was I supposed to feel about that, at 16 years old?

The main doctor on my team, one who was standing there that day, a rheumatologist whose name I will not disclose here, treated me for the next three years. I was treated with high doses of prednisone intravenously, Methotrexate (a chemotherapy drug) via injection, among other anti-inflammatory meds such as Naproxen. After four days, my parents and I finally convinced the hospital to let me go home with all my medicine.

At home, things were different. I couldn’t walk by myself, couldn’t shower by myself, couldn’t really do anything by myself. My family had to help me do all these things. I felt different. It felt like I had been branded with something, and what I felt now had a name I could identify it by: dermatomyositis.

I got out of the hospital a few days before my seventeenth birthday, in the middle of July. For the rest of the summer and into early fall, my parents and I drove to Johns Hopkins twice a week so that I could get intravenous steroid treatments. At home, I did my injection of Methotrexate once a week. Very slowly, I started getting better from dermatomyositis, although I understood it was a chronic disease. Once my dermatomyositis was more or less under control through lots of medication, eventually, I went back to work and had a relatively “normal” life.

Not Quite the End: Relapsing

Three years after my diagnosis of dermatomyositis, I relapsed. I was weaned off most of my medication by this point, and for a couple years, I felt healthier and happier than I had in a long time.

I had lost the 30 pounds I gained from all the prednisone and then some, weighing in at about 125 pounds when I was about 140 when I’d graduated high school. I started college over a year after I was diagnosed, in the fall of 2008, just going part-time to better manage my stress. I even had a few flings with guys I’d met in college. I felt more like a person and less like a patient, until the fall of 2010, when the first relapse happened.

After experiencing an intense period of stress, my legs started hurting again and I felt fatigued. I was afraid. My bloodwork didn’t show any muscle inflammation; my CK levels were normal. My rheumatologist from Hopkins put me back on my medication—lower doses than before—but it helped me get better.

I didn’t want to be on the medication for any longer than I had to. I’d met a guy in my phlebotomy summer program in 2009 who had gotten me into eating healthy. For the first time, I was paying attention to what I ate, buying my own food, and trying to be better about taking care of myself and more conscious of what I put into my body. The medication made me gain weight, feel gross, break out, and the Methotrexate made me feel nauseous.

So, about eight months after relapsing, in 2011, after going off nearly all my medication, I relapsed again just a few months later. At this point, my Hopkins doctor suggested I find another doctor, given that I was well over the age to be treated by a pediatric rheumatologist.

After asking around, I went to see a doctor in Annapolis who was highly recommended by some women in my lupus group. Lupus is a close cousin of dermatomyositis and these were the closest people I could find to relate to. I’d never met anyone else with dermatomyositis. The group was a helpful support to me during this time of believing I had dermatomyositis.

After seeing this doctor, she told me I would most likely be on chemotherapy for the rest of my life to manage my dermatomyositis. I walked out of the office that day and felt completely and utterly hopeless. The sky was gray and overcast, and as I walked to my car, I tried not to cry. I had just turned 21 a few months earlier. I felt like I was going to die.

The End: Discovering the Root Cause of my Dermatomyositis

It didn’t take me long to realize that I couldn’t accept this fate for my life. I needed someone else who could help me. This doctor was not it. I tentatively felt hope. Maybe this wasn’t the end.

I’m not sure where I got it in my head to find an herbalist, but within a week, I began researching online and placed countless phone calls, trying to find someone who could help me. I spoke to a woman who was moving, so she said she couldn’t help me, but to not give up. Eventually, I found Barbara. I began seeing Barbara in November 2011.

During my second meeting with Barbara, she looked at me and said, “I think gluten is causing your illness.” I was confused. I’d heard about gluten, but only in passing. “Doesn’t that cause stomach problems?” I asked. “It can cause many symptoms,” she told me. In my mind, there was no way it was causing my dermatomyositis.

I thought she was crazy. I even told her so. “I was diagnosed at one of the best hospitals in the country,” I told her. “If they couldn’t figure out what was causing my illness, you won’t be able to.” Barbara maintained that once we’d built my immune system back up a little bit, that she wanted me to go gluten-free.

Ideas are strange things. They grow in our minds. And as I left our meeting that day, her words stuck with me. I did more research and even talked to a friend about it. She had celiac disease, and when I told her what my herbalist said, she didn’t think the idea sounded that crazy. She even gave me a book to read, The Gluten Connection by Shari Lieberman.

By the time I got a couple of chapters into the book, I was convinced that gluten was causing my illness. This is what’s happening to me! I remember thinking. I felt a stirring in my soul that can only be described as a gut feeling that this was it.

Although Barbara didn’t want me to go gluten-free yet, I couldn’t stop myself. I immediately stopped eating gluten. Gluten is mostly in bread products, but it can also be in other weird food products such as soy sauce and beer. I didn’t care. I wasn’t eating any of it.

A few days into my gluten-free diet, my family remarked that I looked weak and pale. It was probably my body detoxing from the gluten; I didn’t know. They were worried about me and weren’t exactly supportive of my decision. Of course, I was still taking medication for my dermatomyositis.

A couple more days into my gluten-free diet, almost one week in, I had an extremely long day. I went to school, then work, then to a friend’s house to hang out. My legs, which were almost always in pain, especially after a long day, didn’t hurt. I remember telling my friend: “My legs don’t hurt. This is amazing!”

My dermatomyositis symptoms disappeared about a week after going gluten-free. A couple weeks later, I weaned myself off all my medication for dermatomyositis, dug my feet in for the long haul of being gluten-free, and I haven’t looked back since.

Now: I’ve Never Felt Better

It’s been almost seven years since I went gluten-free, and to this day, I have experienced no symptoms of dermatomyositis and have taken no medication for the illness.

After reviewing my medical history paperwork from both hospitals, I realized that I had never been tested for gluten intolerance. The doctors truly had no idea what was wrong with me. They made their best guess based on their training, treated me, and I got better. But my immune system couldn’t sustain itself without the medication, because the root cause of my disease went unchecked: gluten.

Once I removed gluten from my diet, my body got better. I got stronger, healthier, and gained a little bit of weight back from my skinny frame in my late teens. Today, I work out several times a week (running, yoga, weights, walking) and come in right around 130. I feel healthier than I ever have.

I don’t necessarily blame the doctors. They are only required to take one nutrition class throughout their entire medical education. How could they have possibly known that food was making me sick? How could they have known that my illness wasn’t some cosmic mystery, that it had a cause, a name, and that name was gluten?

I don’t blame my parents either. Should they have taken me to the hospital earlier, rather than waiting three weeks to get me the help I needed? Of course. But, like any other parents, they did the best they could with what they had. I was a child, I didn’t know better, and I was out-of-my-mind sick; I couldn’t advocate for myself. I trusted them to get me help. Although that “help” came much too late, I don’t think it was entirely their fault. I saw the doctor three times during those three weeks I was sick in the beginning, yet only on the third and final time was I sent to the hospital.

I don’t blame myself either. There was a period of time when I did, but the truth is that I didn’t know. I grew up eating Oreos and Hot Pockets. I didn’t know that food could make me sick. I ate what my parents bought and that was it. I didn’t know what gluten was when I was sixteen, didn’t realize that I was making myself sick. So I’ve had to let that go. I know better now, and that’s what matters.

So What Really Happened?

What happened is that my body, for whatever reason, decided to start reacting to gluten and create such a severe immune response that I was diagnosed with dermatomyositis at the age of 16.

If I had caught my disease earlier, it’s likely that it wouldn’t have gotten so bad, although we still wouldn’t have figured out that gluten was the problem. I would have still been on those terrible drugs.

Gluten is a protein. When we eat food, our body is responsible for breaking that food down into digestible particles that the body can use for nutrients. My body decided to start treating gluten like an invader, and since my body was using gluten to nourish itself, my body was attacking pretty much every part of itself.

It sounds weird, yes, but the body can all the sudden decide it doesn’t like something and start reacting to it, quite literally overnight.

I have a couple of theories for why my body all the sudden decided to start reacting to gluten which landed me with a dermatomyositis diagnosis:

  1. I had just graduated high school a year early, had literally no idea what I wanted to do with my life, and was all the sudden expected to figure it out (read: stress).
  2. My family and I had just finished adding an addition onto our house (of which we did much of the work ourselves), and I was exposed to untold numbers of chemicals through paint, insulation, polyurethane, new carpeting, etc. These materials have highly toxic chemicals in them and I was exposed to them every day for several months.

Do I know for sure what caused my body to feel that gluten was the enemy? No. Do I care? Not really. This is my life now, and I’m so grateful that instead of being on chemo, steroids, and other anti-inflammatory drugs, that I just get to skip bread and feel better than I ever have in my entire life.

FAQs

  1. Do you have celiac disease?

I do not believe so, I believe I have a gluten intolerance. Gluten sensitivity, gluten intolerance, and celiac disease are all slightly different versions of each other. It’s also important to remember that an intolerance is different from an allergy. I am not allergic to gluten, my body simply doesn’t tolerate it.

  1. Do you have any lasting effects from your disease?

Yes, but they’re minor. When I get really stressed out, my face gets red and my legs hurt. These symptoms are always temporary and fade within a few hours (provided I deal with my stress!).

I also have to pee frequently thanks to all the prednisone I was on. My weight gain from the prednisone also gave me mad stretch marks. I’m also having minor symptoms of a benign tumor on my pituitary gland; whether this is the result of my illness and all those drugs, I don’t know.

  1. Do you still see a doctor?

I have a deep distrust of conventional doctors, of course. I do see an integrative doctor when I need to and I work with an herbalist to address any other health problems I have.

  1. Did you contact your doctors after you found out?

I did contact my Hopkins rheumatologist to let her know, about two years after going gluten-free. Her response was very nice:

It is great to hear from you. I am very glad to hear that you are doing so well now. You are right—there is still a lot to learn about autoimmune diseases and the interaction between diet and inflammation. I am so happy that a gluten-free diet is working for you. It sounds like you have a bright future planned—please keep in touch and let me know how you are doing. I am sure you will be very successful.

  1. So do you have dermatomyositis?

I do not believe I have dermatomyositis. Dermatomyositis isn’t like other illnesses such as HIV or Lyme’s disease: there is no definitive marker in your blood or tissues that proves that you have the disease. Doctors make their best guess based on your symptoms and bloodwork. I believe my immune system was simply responding to a threat, and when the threat wasn’t removed, my symptoms got so severe that they warranted a diagnosis of dermatomyositis. After seven years of not eating gluten and having no symptoms of dermatomyositis without taking medication, I can only assume gluten was the culprit the whole time. 

I’m looking forward to having a bright future without gluten in it, and feel so fortunate that all these years later, I’m still alive, disease-free, and loving life. A huge thank you to everyone who was part of this journey, even if it wasn’t in the way I wanted or imagined. Would I have preferred to not have been diagnosed with dermatomyositis? Of course. But this is my journey, and I can’t be sorry for any of it.

Also, I wrote a research essay on gluten and dermatomyositis while I was at Penn State. If you’re interested in reading more about dermatomyositis and proof that other people like me who had a dermatomyositis diagnosis have healed from a gluten-free diet, just email me and I’ll send it over!

Thank you so much for reading!

Is Gluten Bad for Everyone?

So is it? Is gluten bad for everyone?

Gluten Bad?

Me back in spring of 2009, when I shaved my pits, had no arm tattoos, and thought gluten was all fun and games.

Oh, and I love how those signs say “Better For You” in the background. REALLY?

Short answer: no. My answer: possibly.

Some people have negative reactions to gluten. Others do not. When considering is gluten bad for everyone, consider that the reason for this probably has to do with a combination of genes, your immune system, and the kind of gluten you are eating, and maybe even where you live.

What Is Gluten?

Gluten is a protein found in wheat, barley, and rye. And it doesn’t have to be whole wheat. That white all-purpose flour you use is chock-full of gluten.

Gluten is what makes bread dough sticky and well textured. Certain kinds of breads and other bread products have more gluten than others. For instance, bagels are reckoned to have one of the highest gluten contents of all bakery products.

Gluten Today is Different

Let’s be honest: gluten today is not the same gluten it was 200 years ago. This is why you’re probably considering is gluten bad for everyone. It’s just not.

It’s processed differently, making many of the nutrients in it unavailable to our bodies or nonexistent, and giving rise to hordes of people who have an adverse reaction to the protein.

What Gluten Is In

Gluten is present in but not limited to: pasta, bread, cookies, cakes, soups, sauces (soy sauce!), dog/cat food and treats, cereals, oatmeal (doesn’t contain gluten itself but is likely contaminated with it through processing), pretzels, etc.

It’s in so much stuff that it’s kind of amazing people are wondering is gluten bad for everyone.

How Being Intolerant to Gluten Works

A lot of people are eating gluten and feel “fine”. I put fine in scare quotes because some people think they feel their best only because it’s all they’ve ever known. They don’t know that they can feel better. And then you have some people eating this who are really sick like I was years ago.

Gluten sensitivity, gluten intolerance, and celiac disease are considered to be responses that are auto-immune in nature. What this means is that the body attacks itself in the presence of this protein (gluten).

The body can attack any part of itself, meaning it could be the cause of irritable bowel syndrome, ADHD/ADD, lupus, acne, migraines, autism, bipolar depression, schizophrenia, dermatomyositis, and more.

For me, my body attacked my muscles in the presence of gluten. I was eating gluten for about 16 years and was totally “fine” until one morning in June 2007 I woke up to some minor muscle pain. In 5 days, I was crippled and could not walk. I was in a wheelchair at age 16.

This sounds bizarre, but this can happen with food allergies, and you need to understand that it can happen. Your body can be totally cool with gluten for years and years, and then one day, it can develop an autoimmune response to it, sometimes seemingly overnight (like in my case).

The same goes for other potential food allergens, which is why many people are wondering today if gluten is bad for everyone.

So some people may have a problem with gluten and not even know it. Have an out of control child? Try eliminating gluten. Have IBS? Again, try eliminating gluten. You could go get tested, but I’ve found the best way to know for sure, due to tests being rather inconclusive due to a variety of reasons, is to just cut it out and see if you see a difference.

If you are going to go gluten-free, you need to do it 100%. You cannot just eat gluten “sometimes”. This is not how it works. You need to be 100% gluten-free for at least 14 days and up to 30-90 days in order for this to work, or to see any difference.

Who Reacts?

I think it’s entirely possible that while not everyone may have an adverse reaction to gluten, many people are living with the consequences of having a gluten sensitivity/intolerance/celiac disease and don’t even know it.

So instead of thinking is gluten bad for everyone, think about whether or not it’s bad for you. Get tested or go gluten-free to know for sure.

I would definitely encourage you to do this if you are experiencing some painful/odd health symptoms and your docs can’t figure out what is going on, or they think they know what is going on but they put you on meds that don’t help. I would extremely encourage you to do this if you are living with an autoimmune disorder such as lupus, dermatomyositis, eczema, Crohn’s disease, etc.

My Gluten Reaction

After what happened to me, I think trying the gluten-free diet for at least two weeks would be beneficial for everyone who thinks that they could feel better.

But of course, I’m biased. The only way to know is to decide for yourself what would be best, not just is gluten bad for everyone.

People ask me if being gluten-free is hard. I say, “Well, it’s easier than chemo.” I was on and off chemo for nearly five years after being misdiagnosed with an illness that gluten was causing.

Where to Find GF Stuff

There are so many gluten-free options out there.

Many restaurants have gluten-free pasta and pizza, if you’re still into cheese (which I’m not). People are understanding that many people have issues with gluten, which is why people are thinking is gluten bad for everyone.

Grocery stores, even ones that are non-specialty now, carry many gluten-free breads and cookies. For me, I don’t like to replace all the things I used to eat back in my Oreo days with gluten-free alternatives.

Why? Because it’s expensive, mostly disappointing (you’ll soon find out why; it’s hard to make healthy flour alternatives taste and look good), and not exactly healthy.

I prefer to eat mainly vegetables and feel good. Plus, you shouldn’t be eating all that sugar!

Gluten FAQ

What is the difference between gluten sensitivity, gluten intolerance, and celiacs?

Gluten sensitivity: a mild form of gluten sickness. People who have a gluten sensitivity may have little or no symptoms from eating gluten. This could stay the same for years, or it could turn into…

Gluten intolerance: a bad form of gluten sickness. People who have gluten intolerance will almost always experience negative symptoms. These could range anywhere from severe unexplained muscle pain to autism. Again, this could potentially stay the same if you keep eating gluten, or it could turn into…

Celiac disease: the most severe form of gluten sickness. People who have celiac disease cannot eat any gluten at all or they will be really sick and experience severe symptoms. This sickness could have symptoms ranging from stomach problems to migraines to skin or muscle problems. The most common symptom is stomach discomfort.

Are gluten and wheat the same thing?

Technically, no. All wheat contains gluten but not all gluten contains wheat. Gluten can be present in wheat, barley, and rye. Wheat has gluten in it, but gluten does not have wheat in it, if that makes sense. If something says “wheat free”, this does NOT mean it is gluten-free! You need to read the labels carefully!

To further complicate finding gluten-free items, you need to understand the definition of gluten-free according to the FDA, because these products can still have small amounts of gluten in them that the body can react to.

Why doesn’t my doctor know about this?

We shouldn’t blame the docs, necessarily. They’re certainly not thinking is gluten bad for everyone. They are trained to treat your ailments with pharmaceutical products. Most of them are only required to take 1-2 nutrition classes (if that) throughout their entire medical education. Plus, they are making some cash monies by pushing pharmaceutical products on you.

Ultimately, you need to educate yourself about your health and you need to decide what is best for you.

Of course, you can consult with your doctor, but don’t let them tell you what to do with your body. They are there to advise and treat you, but they won’t look at food as the first cause of your ailments when they really should. I have firsthand experience of how wrong this can go.

Should my pets be eating gluten?

Depends on your pet.

Some dogs and cats, like people, do fine with gluten. Others have a lot of problems with it including allergies (dark eyes, constant itching, seizures, etc.), poor stools (bloody, loose, constipation, etc.), hyperactivity, lethargy, etc. The list can go on and on.

If your pooch is experiencing any type of health problem (think arthritis or gastrointestinal issues), eliminating gluten might be a good idea. The problem is, most grocery stores carry shitty dog food and cat food brands like Purina and Friskies. You need to go online or try a different store to get quality food that’s gluten-free.

Does alcohol have gluten in it?

Depends on what kind. Beer, yes. Wine, whiskey, vodka, rum: no.

Surprisingly, most alcohols are gluten-free. Beer is a big no-no except for gluten-free beer. But even liquors that are made with barley/malt, like whiskey, are gluten-free because the gluten is processed out in the distilling process. Interesting!

I tried going gluten-free and didn’t notice a difference. Is it possible that another food is causing my symptoms?

Absolutely. Dairy, corn, and soy are more of the big allergens. Dairy is a big one for causing acne due to the hormones in the milk. Everyone’s body is different. It’s going to take some work to discover what’s best for you.

Remember, you didn’t actually “try” to go gluten-free if you didn’t give up 100% of gluten for a period of at least 30 days.

Should I be worried about foods being “contaminated” with gluten if I am gluten-free?

Depends how sensitive to gluten you are.

If you have celiac, you need to be worried. You probably shouldn’t even be eating in restaurants that have gluten in the kitchen.

If you have gluten sensitivity/gluten intolerance you might not even notice if you eat french fries that have been cooked in the same oil as wheat flour. It just depends on your body.

For me, I won’t use the same knife or cutting board that had wheat bread on it, or the same spoon to stir pasta that’s not gluten-free. But I’m down to have those french fries.

So which form of gluten sickness do you have?

I believe I have a gluten intolerance. I have never been tested for gluten intolerance for various reasons, among them being:

1. I was super sick when I realized gluten was making me sick, so I immediately stopped eating it.

2. Tests can be inconclusive, especially blood tests (I know this from being a former phlebotomist). Stool tests are the most accurate tests for gluten sensitivity/intolerance/celiac disease.

What if I have other questions?

Feel free to contact me, but there’s a ton of information out there via books and the Internet. You can also see an herbalist or nutritionist. Your doctor may not be so educated about gluten-free, but this will depend on your doc. Stay tuned for my next post about foodie literature, including some gluten-free staples!